With great honor and pleasure, we announce the 10th Anniversary Meeting of Rare Diseases in South Eastern Europe. This milestone gathering, which has grown into a tradition and an important platform for everyone involved in the care of rare diseases, will take place from October 2 to 4, 2025 at Hotel Sileks, located on the shore of Lake Ohrid.

This year’s meeting will be especially meaningful as we mark a full decade dedicated to raising awareness, advancing diagnostics, and improving treatment for patients with rare diseases in the region.

What can you expect?

The meeting will offer a rich program that includes:

Presentations from eminent experts from the region and beyond,
Discussions on the latest clinical research and therapeutic approaches,
Workshops and sessions focused on diagnostic challenges,
Opportunities for networking and exchanging experiences among doctors, researchers, patient organizations, and pharmaceutical companies.

We warmly invite everyone — including healthcare professionals, researchers, patient organization representatives, students, and all interested stakeholders — to join us in Ohrid. Your presence is essential for continuing to build a strong and supportive community.