JOINING THE MACEDONIAN SOCIETY FOR RARE DISEASES
Become part of a community that understands, supports, and fights for a better life!
The Society for Rare Diseases is an association of patients, families, healthcare professionals, and supporters, aiming to improve the quality of life for people with rare diseases in Macedonia. Through joint action, education, advocacy, and support, we are building a strong network of solidarity and hope.
Why Become a Member?
✅ Access to relevant information and education about rare diseases
✅ Support from the community and exchange of experiences
✅ Participation in activities, projects, and initiatives
✅ Opportunity to advocate for your rights
✅ A voice that is heard – together we are stronger!
Who can join?
Patients with rare diseases
Family members and caregivers
Medical and professional personnel
Volunteers and activists
Anyone who wants to offer support
How to join?
To become a member of the Macedonian Society for Rare Diseases, send an email to:
📧 zdruzenieretkibolesti@gmail.com
In the message, please include:
Your full name
Contact phone number
Briefly describe your connection to rare diseases (patient, family member, healthcare professional, volunteer, etc.)
📩 Contact:
E-mail: zdruzenieretkibolesti@gmail.com
Address: University Children’s Hospital, Vodnjanska 17, Skopje 1000
Заедно можеме да направиме промена!