11th Congress on Rare Diseases in Southeast Europe

🧬 11th Congress on Rare Diseases in Southeast Europe

With great honor, the Macedonian Association for Rare Diseases is organizing the 11th Congress on Rare Diseases in Southeast Europe, which will be held from May 7 to 9, 2026, at Hotel Granit, Ohrid, Republic of North Macedonia.

This significant and now-traditional event is a leading regional platform for the exchange of knowledge, experiences, and the latest scientific and medical advances in the field of rare diseases. Under the motto „Кон персонализирана медицина“ (Towards Personalized Medicine), the congress brings together healthcare professionals, researchers, patient organizations, and all stakeholders with a common goal – to improve diagnostics, treatment, and the quality of life for patients.

📢 Registration is closed

We are pleased to announce that registration for the congress is officially closed, with over 300 registered participants. This exceptional interest confirms the importance of the topic and the need for continuous education and collaboration in the field of rare diseases.

🏛️ Accreditation and Participation

The Congress is officially accredited by the Medical Chamber of Macedonia, whereby:

• Active participants receive 20 points
• Passive participants receive 12 points

Participation is free for all pre-registered participants, with mandatory attendance logging in accordance with the prescribed standards.

🔬 Key topics of the congress

The program covers current and relevant areas, including:

• Early diagnosis and screening – new methods for early detection, with a focus on pediatric aspects
• Innovative Therapies and Clinical Research – gene and cell therapies and the latest medical approaches
• Multidisciplinary approach – collaboration between different medical specialties
• The role of patient organizations – active participation in health policies
• Regional cooperation – Joint strategies for improving care systems

👥 Participants and Meaning

The congress will bring together eminent experts, physicians, researchers, representatives from the pharmaceutical industry, as well as patients and their families from across the region. In addition to the professional program, sessions dedicated to educating and supporting families are also planned.

🤝 Support and Partnerships

The congress is made possible by the support of numerous partners from the healthcare and pharmaceutical sectors, whose shared vision contributes to the development of more effective and personalized medicine for patients with rare diseases.

📍 Information for participants

• Admission to all sessions is free for registered participants.
• The certificates will be available digitally after the congress concludes.
• Food and beverage services are provided on an individual basis
• The hotel's facilities (restaurant and lobby bar) are available for personal use.

📲 Congress Program

You can view the full agenda and lecture schedule by scanning the QR code shown below.