11-ти конгрес за ретки болести Охрид 2026

11th Congress on Rare Diseases in Southeast Europe

📍 Event Basic Information

The Macedonian Association for Rare Diseases proudly organizes 11th Congress on Rare Diseases in Southeast Europe, a significant regional event that brings together experts, healthcare professionals, and patient organizations.

Under the motto „Кон персонализирана медицина“ (Towards Personalized Medicine), the congress serves as a platform for the exchange of knowledge, experiences, and the latest advancements in the diagnosis, treatment, and care of patients with rare diseases.

Date: 7 – 9 May 2026
Локација: Hotel Granit, Ohrid, Republic of North Macedonia


📢 Registration is closed

Registration for the event is officially closed, with over 300 registered participants, which confirms the importance and interest in this field.


🏛️ Accreditation and Scoring

The Congress is accredited by the Medical Chamber of Macedonia:

  • 20 points for active participants
  • 12 points for passive participants

Participation is free for all pre-registered participants, with mandatory attendance registration.


🔬 Program and Key Topics

The congress covers contemporary and relevant topics:

Early diagnosis and screening

New methods for the early detection of rare diseases, with a special focus on pediatrics.

Innovative therapies and research

Gene and cell therapies, as well as the latest clinical trials.

Multidisciplinary approach

Collaboration between pediatricians, geneticists, neurologists, and other specialties.

Role of patient organizations

Active participation in creating health policies and supporting patients.

Regional cooperation

Development of joint strategies in Southeast Europe.


👥 Participants and Significance of the Congress

The event will bring together:

  • doctors and health professionals
  • scientists and researchers
  • pharmaceutical industry
  • patients and their families

In addition to the professional program, education and support sessions are also planned.


🤝 Support and Partnerships

The congress is made possible by the support of numerous partners from the healthcare and pharmaceutical sectors, whose shared vision contributes to the development of more effective and personalized medicine for patients with rare diseases.


📍 Practical information for participants

  • Admission to all sessions is free.
  • The certificates will be available digitally after the event.
  • Food and beverages are on an individual basis.
  • Hotel services are available for cash.

📲 Congress Program

The full event agenda is available via the QR code below.