Join us

JOINING THE MACEDONIAN SOCIETY FOR RARE DISEASES

Become part of a community that understands, supports, and fights for a better life!

The Society for Rare Diseases is an association of patients, families, healthcare professionals, and supporters, aiming to improve the quality of life for people with rare diseases in Macedonia. Through joint action, education, advocacy, and support, we are building a strong network of solidarity and hope.

Why Become a Member?

✅ Access to relevant information and education about rare diseases
✅ Support from the community and exchange of experiences
✅ Participation in activities, projects, and initiatives
✅ Opportunity to advocate for your rights
✅ A voice that is heard – together we are stronger!

Who can join?

  • Patients with rare diseases

  • Family members and caregivers

  • Medical and professional personnel

  • Volunteers and activists

  • Anyone who wants to offer support

How to join?

To become a member of the Macedonian Society for Rare Diseases, send an email to:
📧 zdruzenieretkibolesti@gmail.com

In the message, please include:

  • Your full name

  • Contact phone number

  • Briefly describe your connection to rare diseases (patient, family member, healthcare professional, volunteer, etc.)

📩 Contact:
E-mail: zdruzenieretkibolesti@gmail.com
Address: University Children’s Hospital, Vodnjanska 17, Skopje 1000

Заедно можеме да направиме промена!